As a chronic babe I define passion as: A healthy “insanity” – being engaged in the lives of others and in pursuits, hobbies and interests that I love enough to risk a flare up in my symptoms to participate in.
Here are a few of my “loves”:
- Emotional wholeness – growth, self – development, healing the scars of the past, grieving all of this takes work, a lot of work, and sometimes causes a flare in my symptoms. I long to come through the other side of it a better, healthier person for myself and for those around me and to have the best relationship possible with the love of my life – my husband.
- Good food, authentic friendship, and fun: My husband and I have been part of a group for about two years. We meet weekly in each others’ homes and “eat, pray and love” together. Food is brought by everyone true potluck style. There is a genuine community there, and real friendship. As a group, we care, share, listen and pray. This night, I often don’t get home until past my bedtime. I’ve recently figured out just how much not enough sleep causes a flare in my symptoms, but being part of this group is worth a few missed zzzz’s. We are extremely close with one of the couples that we met through that group.
- Bringing beauty to my world (and capturing it to share with others) – In our yard we have nine flowerbeds. We have tried to make them as easy-care as possible. We have planted many perennials as they pretty much look after themselves. The beds still require some weed and water care. I sometimes wonder what were we thinking. But then I see these and it makes it all worthwhile. [All of these photos were taken in our gardens.] Gardens are a balm to my soul.
- Create a clean and de-cluttered space – “chaos without, chaos within”. Clutter distracts and dirt disturbs. As much as this is important to me, I had to learn to give myself permission to let lots go to watch the flare-ups.
- As a babe with noise sensitivity, I crave peace and quiet. The outside world often feels like an assault; in my home I keep noise levels low, mute the TV during commercials, rarely play music [and a request to my fellow bloggers: if you have music on your blog, please provide a ‘mute’ button for us sensitive folks to click on to shut off.]
- Writing and Photography– The hobbies I love, that don’t love me back, or pay the mortgage. But I gotta do it. It’s challenging, cathartic and creative. On top of the pain and stiffness of fibromyalgia from sitting at the computer, I’ve now got tendinitis issues in my arms and am in physiotherapy for the same. It’d be a little better if I actually made some money from it.
With all of these things, I do wonder if I am I my own worst enemy or what? When that thought hits, I turn to my Flare Reducer, Laughter – Jokes, silly de-motivator posters, the Big Bang Theory, all make me laugh. I love to laugh, have a great sense of humor, and it is a great stress release and flare reducer. It really is the best medicine.